Bluefield Daily Telegraph, Bluefield, WV

Local News

May 27, 2014

Spencer, 9, gets her wish for Disney

BLUEFIELD, Va. — Friends and family far and wide gathered for a cookout celebration at Graham Recreation Park Monday afternoon to send off Ellie Spencer on her Make-A-Wish Disney World trip.

 Ellison “Ellie” Spencer, 9, of Bluefield, Va., the daughter of Jim and Becky Spencer, received a trip to Disney World in Orlando from the Make-A-Wish Foundation.

 Ellie was diagnosed with Marfan Syndrome when she was only 3 months old and underwent the first of three open heart surgeries when she was only 6 months old.

 Marfan Syndrome is a disorder that affects the body’s connective tissues that hold all of the body’s tissues, bones and muscles together, her father Jim Spencer explained.

Becky Spencer said “Make-A-Wish paid for us to have a send-off party for our friends and family to see Ellie before we leave for Disney on Wednesday.”

Ellie is just beyond excited, her mother said. “She has no other trip to compare this one to and she talks about it every single day. The VFW Post 9696 in Bluefield, Va., gave Ellie some money for her trip. When we were in Baltimore getting final medical clearance for the trip, she went to the Disney store and bought a princess outfit, crown and shoes and she cannot wait to wear it.”

Make-A-Wish Foundation granted Ellie with a trip to Disney after learning about her Marfan Syndrome and all of the surgeries and struggles she has been through.

The family does not know who submitted their name to Make-A-Wish but they could not be more thrilled for the trip to Disney.

“We leave on Wednesday and all six of us are going together and that is something we would have not been able to do without help,” Spencer said.

Ellie said she cannot wait to get to see the Frozen characters Anna and Elsa and all of the princess castles.

“I cannot even explain my excitement. It’s like a million, zillion, trillion excitement, I go to sleep with a smile on my face every single night,” Ellie said.

— Contact Anne Elgin at aelgin@bdtonline.com

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